An update on Trey from Rachel…
Friday update! Soooooo, Jay spoke with Dr. Shaw this morning about what all the doctors discussed at the Tumor Board yesterday. There’s good, there’s bad, there’s burden…
The options we were given all ‘seem’ horrible. Which form of torture should we pick for our baby? Wipe out his immune system? Expose him to boat loads of radiation? Travel far from home? Long hospital stays? Hair loss and nausea? Trey is old enough now that he will probably start to protest and be more aware that going to the hospital isn’t always fun. He definitely will be sad to miss school…let alone be super sick/weak. We can’t even decide because Trey first has to go through a battery of procedures next week so that the doctors can get a more in depth picture of what’s going on inside him.
On the up side (???) Dr. Shaw seemed to be encouraged by the options as viable treatments for Trey. And, as of now, Trey’s aortic patch is good and does not need to be replaced any time soon.
Jay and I are devastated and heart broken to have to make these decisions. We know that God is using Trey as well as holding him close and giving him the strength to be our Young Warrior, it’s just hard to understand why Trey has to go through this. As any Momma would, I want to walk through this fire for him, protect him, take it from him…anything.
All that to say that next week, Trey will have an MIBG scan. This scan takes a long time, so Trey will need to be slightly sedated. Any “active” cancer will glow brightly and let the doctors see exactly how much of the cancer is active and where. The next day, Trey will need a bone marrow biopsy that will see if there is any cancer in his marrow. Trey will have to be asleep for this procedure so that the doctor can tap into his back bone to get a sample. Nice, huh? Jay is on duty for that one!
We’ll continue to keep you all updated.
An excerpt from today’s Streams in the Desert:
Unanswered yet the prayer your lips have pleaded
In agony of heart these many years?
Does faith begin to fail? Is hope departing?
And think you all in vain your falling tears?
Say not the Father has not heard your prayer;
You will have your desire sometime, somewhere.
Unanswered yet? No, do not say ungranted;
Perhaps your work is not wholly done.
The work began when first your prayer was uttered,
And God will finish what he has begun.
If you will keep the incense burning there,
His glory you will see sometime, somewhere.
Unanswered yet? Faith cannot be unanswered,
Its feet are firmly planted on the Rock;
Amid the wildest storms it stands undaunted,
Nor shakes before the loudest thunder shock.
It knows Omnipotence has heard its prayer,
And cries, “It will be done” – sometime, somewhere.
~Ophelia G. Browning
In agony of heart these many years?
Does faith begin to fail? Is hope departing?
And think you all in vain your falling tears?
Say not the Father has not heard your prayer;
You will have your desire sometime, somewhere.
Perhaps your work is not wholly done.
The work began when first your prayer was uttered,
And God will finish what he has begun.
If you will keep the incense burning there,
His glory you will see sometime, somewhere.
Its feet are firmly planted on the Rock;
Amid the wildest storms it stands undaunted,
Nor shakes before the loudest thunder shock.
It knows Omnipotence has heard its prayer,
And cries, “It will be done” – sometime, somewhere.
~Ophelia G. Browning